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Sleeping Arrangements
Many alternatives are available for bedding for people with Huntington's disease. When the current bed becomes unsuitable, look to see what is wrong from the patient's perspective. If they are falling out of bed because of their chorea, look at hammocks or a floor bed. If clumsiness and trouble with balance is a problem, then a trapeze bar added to the bed frame, or a bed at the same height as a chair can be used to ease transfers. Remember to look for safe alternatives that can preserve the persons ability to move and that does not isolate them from their environment.
Hammocks
In Venezuela most everybody sleeps in a hammock, including those in the large Huntington's disease kindred's in the highlands. These are not the North American back yard hammocks that are so hard to sit in, but hammocks that completely enclose the person. Two, seven foot long by seven foot wide 100% cotton flat weave hammocks are what you should try to get. They will need to be secured to support beams by boat hooks. You will need a structural engineer or builder to help find the posts to secure the hooks to. Most nursing homes of Veteran's Administration hospitals (VA) will give you one chance to get it right.
You need two because one is always in the laundry to remove pee, poop and food. Your best bet is to hang the hammock out to dry; in fact they do not fit or last long in home dryers.
Hammocks are available through non-profit cottage industry catalogs that sell products from cooperatives in Central and South America. One excellent source, used by many in the Huntington's disease community is: Pueblo-to-People, ask for a buyer to special order these hammocks, because the buyers know which ladies at which cooperatives are still working, as the hammocks are no longer a regular item.
Sleep on It
Got a problem? Need to come up with a creative idea for work or a plot for your novel? Think it over, then go to bed and sleep on it. It works. Ask David Somers, a professor of psychology at Boston University. His work leads him into exploring how the brain works. Somers read the book, "A Treasure's Trove" and began focusing on finding the solution.
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